I'm asking for your help to honor my daughter Mighty Mia.
Mighty Mia was a force of nature. She came into this world and changed all of those she met.
Abandoned in the NICU at 2 days old. She was born with only half a heart and was in desperate need of a heart transplant. OKDHS was unable to find a family willing and able to take her. I was throwing a graduation party for youth in foster care and learned of the baby who had been moved to a long term medical facility to pass away. UNOS, the Organ Donation Board, denied the child to be listed because there was no caregiver to be vetted. Immediately, I went home and spoke with my family about bringing the baby to our home to pass away in a loving environment, but God had other plans.
Long story short, I lived in St. Louis with Mighty Mia until receiving her precious gift of a new heart at only 3 months old. We adopted Mighty Mia and had 7 and a half blessed years with this special angel.
Mighty Mia was diagnosed with Post Transplant Lympho-proliferative Disease, a form of Lymphoma specific to transplanted children. She was diagnosed on May 17th, 2017. We began a new type of chemo that was expected to shrink the painful tumors that took over her body and were splitting her bones in some places. Mia received relief almost immediately and we had a wonderful summer with her before she passed away on August 17th, 2017. I recently learned that the chemo that gave us that time together was a research project funded by The Leukemia Lymphoma Society that produced the medication Rituximab. See the picture of her PET scans below that show how the tumors shrank over the 6 weeks. I am forever grateful and believe in supporting LLS and the research they are doing.
Mia's great love for others and the many challenges she faced inspired our family to continue to celebrate her life after her time here was over. We will celebrate Mighty Mia's birthday, April 15th, each year and fundraises to benefit efforts of those who lift up foster care, adoption, organ donation, cancer fighting, special needs, medically fragile and all those that care for them. This year all funds will benefit Leukemia Lymphoma Society.
Please join us in celebrating our Mighty Mia by attending our celebration of Mia and/or making a donation at my LLS webpage, https://pages.mwoy.org/ok/okc19/ldavis,
All my love and appreciation,